Rare diseases effect 25-30 million Americans and thousands of children are on long or endless undiagnosed disease odysseys. Many children at Illinois Children’s Hospital experience these difficult diagnostic odysseys and some have become unbearable cold cases without answers.
OSF Breakthrough Treatment Center and the Children’s Hospital of Illinois are participating in creating a game-changing collaboration platform that forms joint teams between world-renowned diagnosis expertise/infrastructure and local care/infrastructure. By centralizing certain highly specialized global resources the network looks to make difficult diagnosis possible against the odds and keep kids closer to home.